About the Film

Years with ALS have left Kathryn paralyzed and needing 24-hour care. With her mind intact and having opted for mechanical breathing, she could live like this indefinitely. But the situation has embittered and alienated her husband Saïd, and proved to be too much for many nurses and aides. Her grown son Noah, who lives with Kathryn and Saïd in their New York City apartment, struggles to balance his academic obligations with those he feels to his mother. The disease has also been a destructive force complicating relations between everyone in her family. Kathryn often falls into despair, but she has been holding on to see her daughter’s wedding day. This project draws on 930 hours of footage, all filmed without any crew present, with a fixed camera from Kathryn’s point of view.
Winner of the Best Film Award at the National Documentary Competition of the 2022 İstanbul Film Festival, the film presents a profoundly intimate, layered and wryly funny portrait of a family at its breaking point.

⚠️ The screening will be followed by a Q&A session with the participation of the filmmakers.